Sunday, May 11, 2008

Spinal Tap & Brace

The doctor called on Thurs. while I was in DE and let us know that the results came back on the spinal tap and blood work, and as we had suspected, I don't have the treatable muscle lost. They tested for three things: 1. infection 2. inflammation 3. nerves/muscles dying. The first two tests were normal, which means I don't have either of these causing the 3rd, which did test positive. My new dr. is in agreement with our previous dr. about diagnosing me with ALS in order to get the services I need. He also agreed w/ my previous dr. about scheduling clinic every three months. So, we will be switching to the new dr. and talking to him about what drug trials I qualify for in the future.
Bob said the brace place didn't call this past week so we'll have to call tomorrow to see if my brace is in. I used the little ankle brace all week last week and I assumed it worked because I didn't fall once. :-)
Happy Mother's Day to all of the mom's reading this!

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