Saturday, July 5, 2008
EMG Update
I went for the EMG on Thurs. I assumed that I would have the needle in the muscle part, but it turns out it he wanted to test my nerves, not my muscles, which is done through the electric shock part (which I dislike even less than the needles in the muscles.) He said that if my nerves were damaged on the outside it would indicate an infection, rather than if they were damaged on the inside it would indicate ALS. Unfortunately, mine are damaged on the inside. He's now calling it ALS, not just so I can get the support I need from the ALSA, but because that's what he's landed on as a diagnosis. The good news is, my reflexes continue to be normal, which both the doctor and I are taking as a good sign that it's progressing slower than most ALS cases which should equate to a longer life expectancy. The doctor talked to us again about getting me involved in drug trials once Joshua is born because there are a couple starting in the Dec./Jan. timeframe . . . so we'll continue to hope that I'll be involved in the Lithium trial which looks the most promising so far.
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