Sunday, September 7, 2008

Clinic

I had clinic this past week, which will be last one until mid-January because my due date coincides with the three month schedule. I will see Dr. Levine at his office the first week or two of Nov. though so we can talk about a couple of drug trials starting in Jan. and make some decisions regarding which one I want to participate in.

The ALSA is making an appearance on Mid-day Arizona (a local talk-news show) on 9/23 to talk about all of the great things they do and Kim has asked me to join her on the show. So, I'll have my 15 min. of fame in 3 min. or less :-) I'm nervous about the whole t.v. thing but I'm thrilled to be able to help promote awareness about the ALSA.

I hadn't posted this on the blog, but I've had some trouble breathing the past few weeks, which was really freaking me out. All of the symptoms I had could be explained by pregnancy or changes as a result of the ALS, so I was anxious to see if they could determine which it was. Great news is it looks likely that it is pregnancy related! I blew a 79%, which was my lowest but not much lower than the 81-85% I've blown in the past and wasn't a concern to the respiratory therapist. The test that they are more concerned with, I blew a -60 last time, which is good, and they look for a -60 or lower. This time I blew a -35 and -39, which was concerning, but once I straightened up I blew a -60. She said this indicated it was just Joshua sitting on my organs/diaphragm. The other thing that indicates it's Joshua is that I am getting short of breath at random times and positions; whereas, if it were ALS driven it would be more consistent with activity and position.

Well, those are the highlights from clinic so that's all for now!

1 comment:

Suzie said...

Hey Tasha- this is Suzie Dittman from work. I was just advised of your diagnosis with this horrible disease and am very sorry to hear that you and your family are having to go through this experience. I just read through your blog history and wanted to thank you for sharing your experiences - you are a very brave woman - you probably don't feel like you are, but the mere fact that you are sharing your thoughts and experiences for the world to read is in itself brave. Congratulations on your baby ~ again, another brave endeavor! I can't believe how beautiful Tana is - I remember you always talking about her when we worked together in FPD - - seems like eons ago! I must admit that this is difficult for me to write because it has been such a long time since I've seen or spoken to you and I didn't know what to say -- but I wanted to let you know that I was thinking about you. I'll keep reading your blog, keep up with your life and drop a line every once-in-awhile. Take care of yourself! Suzie