Not much to report, but I figure it is easier in snippets rather than a novel!
They saw Dr. Levine on Friday and discussed the Eye Gaze machine and the Sip & Puff. They have started the process of getting insurance company approval on both. Tasha expects it to take a few months. They might have to fight the insurance company on the Sip & Puff machine, as it's not typically used for ALS patients.
Tasha has been taking 2.5+ hour naps in the midst of the chaos generally going on in the house. The doctor thinks her ability to sleep so soundly indicates that her carbon dioxide levels are too high, so he has ordered a 24-hour oxygen study. The respiratory therapist is coming on Tuesday to change the levels on her bi-pap machine. Hopefully the 24-hour study order will be approved by then so they can start that in the same visit.
On a fun note, it sounds like Tasha's 39th birthday was quite memorable! For those not in town, they had a group of about 30 people meet up at the Mystery Dinner Theatre. I'm sorry that I wasn't in town for the event and I hope to see pictures of Bob's on-stage dance soon!
That's it for now! Hoping to chat with Tasha tomorrow to find out about Joshua's speech delay.
Monday, August 24, 2009
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1 comment:
OMG..That's a great picture! LOL I can't wait to see the rest from the evening! WHat a great time!
Thank you for sharing your birthday with us! It was great to see your smile!
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