It's been a while since my last update because I think I have spent the entire last month spitting practically non stop....I wish this was funny but I am serious and it's not funny at all. One of the characteristics of ALS is excessive saliva that can also run too thick or thin. As a kid, I was never able to hock a loogie...and therefore, I was never cool with the kids I ran with. However, I am an expert now!! Although, I have been teased that I need to work on my range because there are times I can barely get it into my spit cut. The other new issue is I am having problems with neck control so spitting doesn't sound like a lot of effort but when you are doing it every 5-10 mins, half of the day, and then having to raise my head back up every time, it is extremely exhausting. I've tried 3 different medications in the last week, none of which have worked. But I am trying a new dosage as of today. Most Pals that have this issue are no longer eating and have radiation done on the salivary glands but since I am still eating, that would eliminate my ability to do that. If this current dosage of drug doesn't work, the next option is botox (who knew I'd be getting plastic surgery before 40!!! I am shooting for implants too!! hee, hee )If none of this works, I will be ready to have the radiation done and give up eating because this spitting is that bad. It prevents me from being able to go out and basically, controls our lives at this point.
On a positive note, Joshua learned how to sit up from a laying down position over Memorial Day weekend and is now a sitting up fool!! He has made unbelievable progress with his fine motor skills such as his ability to stack rings, cups, etc. He's starting to out grow his stranger danger phase but definitely still prefers people he knows. He has turned into a huge flirt and makes googley eyes at every cashier and waitress he encounters. :o)
Tana is thrilled to be out of school for summer!!!!! She took the SAT last weekend and takes the ACT this weekend. She's working and volunteering this month. She leaves for her annual MN vacation at the end of June. She, Mandi, two of her friends and I went to the Tim McGraw concert last week. (The only place where my spitting didn't seem unusual!!!) It's our first concert in a round of concert series that we have planned for this summer/fall as part of Tana's bday present.
That's all for now....
Tuesday, June 8, 2010
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1 comment:
hi Tasha..I check in here to see how you're doing. Just wanted to say hi and let you know I'm thinking of you. Your kids are growing up beautifully. Debbie Nach
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