Quick Update

I went to clinic a few weeks ago. It was pretty uneventful other than a few recommendations for chair modifications to make me more comfortable and we need to meet with 3 hospice providers in the near future. The doctor recommends meeting with 3 so we can learn more about what they offer because once you sign up with one, you are eliminating your insurance and using hospice for dr appts, etc. They make an exception with ALS and allow you to continue attending clinic but basically we want to see if we get any more care hours during the week through hospice. My doctor also signed my DNR (do not recessitate) forms, one of which is hanging on our refrigerator and the other will be attached to my chair. We are also going to get an adapter so my bi-pap machine can be attached to my chair so I can go to the Brad Paisley concert this month and the ALS walk next month!

Joshua has said his first official word which is "PLAY". He says dada when Bob enters the room, but he also says it when he is babbling so I don't count that as his first word!! :) He mimics about 10 words or phases, some of the cuter ones are "all done" and "oh boy". Bob has taught him how to point his finger in the air and say "OOOOO UUUU", when OU is kicking off the football. Joshua is on the brink of crawling and will be doing it for sure by his birthday. We will be in trouble once he is mobile because he has endless energy and lots of curiousity.

Tana is working on her college applications. She has applied to ASU and is in the process of filling out the U of A application. In addition, she has selected approximately 8 other schools that she is interested in with her two dream schools being Stanford and MIT. In the end, her school will be chosen by the one who provides the most financial aide/scholarships.

We are actively fundraising for the ALS walk so dont forget to visit my website and please consider making a donation!!